Where Have I Been

I have missed blogging, oh hope when I don't post for awhile it's noticed, as that being egostic, I don't know. Well have been busy on my other platform while blog been on silent end, have done YouTube Vids.

And early this morning

Whilst I have voice I will keep using it, and will not be afraid to hide away.

Please take the time to watch, share, comment, mean a lot.

Thank you everyone x

Again!!!!!

You must be wondering what again, what's this again about well might of notice been bit quiet recently on all my social networks. Well once again got rushed to hospital, was out with my carer somewhere, and at the end of it I had several seizures thankfully lot of first aid people around me to help. They called for ambulance my carer travelled with me. A lot of it being a blur once again.

They put me on drip and had to be admitted into hospital. Whilst in hospital boredom striked as had no phone charger, plus was so exhausted just in a haze. However did doodle when finally got tiny bit of energy. These are some I done.

I am back at home now, just resting still somewhat drained which is to be expected. But I thought I pop in so you don't forget about me.

Admitted Into Hospital Via A&E (Accident And Emergency for my non Brits readers)

I apologise in advance if you find these pictures disturbing however it's reality my reality.

Yes I look a mess, last thing I was worried about was make up and my hair in the midst of passing out, collapsing, can't even remember calling the ambulance, the paramedics packed my phone, some meds and door keys, locked my door for me. So I was in A&E on Wednesday afternoon 20th March 2013 didn't think nothing of it, even right up until eve/night time thought yeah going home even though I was in critical state, I could barely talk. Doctor said I think you should stay over night to monitor me, got moved to short stay bit can't remember the name as things was just haze for me, whilst there I took a turn oxygen mask on again needles monitors doctors nurses rushing around me, so by this point you may of guessed it I am not going anywhere I am staying here now. I got transferred to a ward and that became my home, all the while still thinking oh I am going home today, doctors was like Er no Lucy, really wasn't well, I even had to be glued to my bed for one whole day couldn't leave it trust me I tried it but the nurse came rushing over like get back in that bed, put the bars up so it restricted me. It amazed me how nurses showed concern stroking my hand telling me it be OK, even doctor held my hand, which is rare these days.

Cannot thank enough nurses/health care assistants work their butt off, long hours, give my hats off to them, was always good having bit of banter with them. I was prodded everywhere, needle pricked pretty much everywhere both arms and hands, back and stomach.. Tests... 7 days later I got discharged Wednesday 27th March 2013 Night time yes night time, don't ask. 

Won't bore you with details as I have rambled enough, yes Fibromyalgia flare up, severe migraine however I have other health problems which is still under investigation, I know I have been vague but if you have any questions please feel free to ask. I hope whomever is reading this is ok, if you not you can get cyber hug from me if that helps, doubt it but it's the thought that counts ;) xx

Dear Open Diary

In these last couple of months life has thrown me back and not in good way. I had plans on doing certain things however couldn't due to my unpredictable health. Even now I find myself feeling left out as I just don't have the energy and I still have underlining health issues that seems to be still a mystery besides my fibro etc obviously. I even find myself more awkward as I feel like I don't have much to contribute to a conversation. Might not be going on holiday every minute heck not been on one for years now, or go to festivals/gigs etc.. However I have good heart and like to think I'm there if you need me.

The point is as upsetting as it is to miss out on social gatherings (friends/bloggers meet up/events) it's something out of my hands, but I will say this don't forget sick people like to have fun too you know. I won't lie I do find myself getting upset, just simple thing like a hug would of helped me somewhat but you know just get on with it. 

Reason I picked this photo is because the sky is something I always look at, spend periods of time just looking at the sky, also I felt content when I took this picture, snapshot of a memory I like to look back on. Oh by the way this picture hasn't been photoshopped or anything, naturally turned out like this, beautiful isn't it.

Sorry if there wasn't a beginning, middle and an end properly, and that's all other the place, I am bit of a scatter brain, however I just wanted to express myself hence the title dear open diary, as I am sharing with you. How many others feel the same? or perhaps you always working so you miss out on things? Or you live to far from everything and can't get to places.....

Would love to hear from others/you, and if you offering a hug I'll take it, much appreciated ;) 

x

Fibro Fun Day Event

Raising Awareness, so many people have it, yet hardly anybody has ever heard of it/about it. The event took place in beautiful gorgeous building, historic and simple was perfect. So blessed that we had wonderful weather considering lately all it's done has rained. Best believe we enjoyed the sun immensely.

Kingswood House, London.

Had variety of different activities, things for the kids bouncy castle, face painting, arts&crafts, football and more.. Food wise you had fruit, cakes- cupcakes, cookies, popcorn, candy, and Caribbean food on offer. Handmade jewellery that was sold, which I bought couple, that will be in separate post, as I will be doing a giveaway, coming very soon, oh yes bought extra for my readers, toys, books, and other accessories. Dance act performances which were all good. Raffle. Advice for sufferers.

There was a support group which I found the most beneficial, actually meeting others face to face who has fibromyalgia, we all could relate to one another, so refreshing and touching hearing about each others experiences. Learning about techniques on how to soothe the body. Then there was relaxation class, which was just what the doctor ordered. Having chit chat with others. Sense of community, which I loved. Even helped give insight (a snippet) to our friends/families on what we go through on daily basis. I know it educated Jo who was my partner for the day hehe (my friend that came along with me). We both enjoyed the day, so glad  attended, met some lovely people. Everybody who was involved  working for this cause and shall continue too should feel proud, thank you, insert smiley face, as even those myself included who wasn't involved, still deserves a well done as we all know it's not easy, just going out is a mission. Gentle soft pat on the back to all.

Please if you know anybody with fibromyalgia, please do tell them about this website, even if you don't have it and want to know more, worth checking out either way.

x 

 

There will be event where everybody is welcomed invited to- Fibro Fun Day, this is very dear to my heart, the lovely lady who is behind it all is Lindsey Gibbs who herself suffers with Fibromyalgia. Bringing awareness, support, and  community spirit. 

You don't need to have fibromyalgia to attend this event, if you reading this, don't know anybody who has  it- well you know me. So that's not a problem. I will be one of the guest speaker's at the Fibro Fun Day Event, go me for public speech.

Fibro Fun Day Awareness & Fundraising Event

Takes place on Sunday 13th May 2012

Family Day Out

Activities for adults and children - Massages, bouncy castles, face painting, performances and more...
Time: 12 - 5pm
All details here

Twitter
Facebook

Website

Would love to see you there, if you can make it. And for those who can't come because of distance or illness, don't worry I will be doing Blog Post about the actual day, so it's like you with me any way, the joy's of the web, don't miss out my lovelies.

PS- If you want the PDF of the poster, please do not hesitate to ask, leave me your email address and I'll send you the attachment. 

x

Out Of The Loop

With everything going on, this is how I feel. This isn't directed at any one in particular.

Boo Who!

Sorry pre warn you this isn't a sunny fashion happy go lucky blog post. My moods are more erratic due to my stupid stubbornness of not getting one of my medication that ran out, that's long story, and no it isn't the ones that treat my manic depression. And due to personal things why I am a bit odd lately. Plus of course living with fibromyalgia just the invisible best friend that I don't want..

Seeing events on my time line (twitter), group meetings, I feel so removed from social things. Never knew needing rest so much would be part of my every day schedule. I just need to have little moan, don't worry I be back to Loopy again, just right now feeling a bit more sensitive. Any body wanna take me out? (none sexual way haha).

End Of The Year. Random But Short!!

I won't be doing New Year Resolution's post, as I feel my life is forever changing, whether it's me having less anxiety, less falls, less flare ups more flare ups. Accepting more and more of my condition (fibromyalgia), working around it, knowing that my depression can be handled or at least not to take it to that next level of suicide. Being more open, if you was to talk to my family& friends they would tell you I am strong person, so I shall try to embrace compliments. Ideally of course I would like to be slim, but that takes time, and to be honest there isn't a rush for it, my health comes first meaning I have to work around my illness. Also in my defense I gained a lot of weight because of the treatment (meds) I had, thankfully not on them any more, I am on different medication. Ok this sounds a bit like New Year Resolutions opps, haha.

Little steps for others have been my biggest steps for me. Whether 2012 is better or is the same as 2011 I am just grateful I can step out my front door, get out of my own bed without needing help. Able to do the little things when I can.

For any body reading this, appreciate what you have, not what you going to gain.

Lots of Love
Lucy
xx