Behind The Illness

This will be open frank post, I need to be honest as so many times people see pictures on instagram think you life is great or somewhat together. When really for me the pics above is true representation of me, however you cannot see the hot water that is beside me. Being in constant pain, everything tires me out, the dining out pics I have on instagram afterwards I get home I am exhausted, usually nap. With different health problems that's going on besides the norm, I go onto facebook to have my moan, then I see another person is pregnant and part of me is sadden, I be turning 30 this year and making me reflect even more, I wanted of achieved so much for myself, motherhood, a career, a home I bought. None of them I have achieved and does get me down, no one congratulates you for getting up each day, living on through the pain, so many times when I have seizures I ask can you take me now, so I don't have to suffer anymore, however it does strengthens me. And I completely understand I'm in no means in worse case scenario, I'm not dying or anything like that.

Just don't want to be invisible just like my illness is, will continue to be inspired to those who keep fighting, achieving their goals regardless of the struggle. I hope one day I can inspire somebody.

Honestly hitting the post button making me somewhat anxious will anyone even read this, or comment, as open myself. However someone out there might be feeling the same or similar, just know you not alone, hugs. x

PS- Yes I do snuggle with a teddy.

New Year. 2015 Here We Are

What can I say bit late to the party however Happy New Year everyone, hope you all had great Christmas. Won't be summing up 2014 as to be honest even though was highlights, very special moments, changes in my life, however health wise same crazy flare ups and other problems. Have I made any resolutions, the way my health is so unpredictable I just try to enjoy the things I can do, and less dwelling on what I cannot do, which for me is on going challenge as do battle with myself. Also keep raising awareness about how disability comes in all shapes and forms, mental health and of course fibromyalgia which in itself sets off other illnesses. Although I am just one voice, pretty loud voice if you ask anyone who knows me, I blame my family we all pretty loud although couple may disagree, but they are just in denial it's ok. Let's keep this blogging going, hopefully it grows.

Have you done new year resolution blog post, recap of 2014, share it in the comment section, love to read them, even if you haven't I am open to reading new blogs.

Vlog Blog

I know the quality is crap, just don't have the energy to get out my camera out, set it up etc, I just wanted to talk and express myself.

Lets chat x

Admitted Into Hospital Via A&E (Accident And Emergency for my non Brits readers)

I apologise in advance if you find these pictures disturbing however it's reality my reality.

Yes I look a mess, last thing I was worried about was make up and my hair in the midst of passing out, collapsing, can't even remember calling the ambulance, the paramedics packed my phone, some meds and door keys, locked my door for me. So I was in A&E on Wednesday afternoon 20th March 2013 didn't think nothing of it, even right up until eve/night time thought yeah going home even though I was in critical state, I could barely talk. Doctor said I think you should stay over night to monitor me, got moved to short stay bit can't remember the name as things was just haze for me, whilst there I took a turn oxygen mask on again needles monitors doctors nurses rushing around me, so by this point you may of guessed it I am not going anywhere I am staying here now. I got transferred to a ward and that became my home, all the while still thinking oh I am going home today, doctors was like Er no Lucy, really wasn't well, I even had to be glued to my bed for one whole day couldn't leave it trust me I tried it but the nurse came rushing over like get back in that bed, put the bars up so it restricted me. It amazed me how nurses showed concern stroking my hand telling me it be OK, even doctor held my hand, which is rare these days.

Cannot thank enough nurses/health care assistants work their butt off, long hours, give my hats off to them, was always good having bit of banter with them. I was prodded everywhere, needle pricked pretty much everywhere both arms and hands, back and stomach.. Tests... 7 days later I got discharged Wednesday 27th March 2013 Night time yes night time, don't ask. 

Won't bore you with details as I have rambled enough, yes Fibromyalgia flare up, severe migraine however I have other health problems which is still under investigation, I know I have been vague but if you have any questions please feel free to ask. I hope whomever is reading this is ok, if you not you can get cyber hug from me if that helps, doubt it but it's the thought that counts ;) xx

Portrait Of Life

Living with chronic illnesses is draining mentally and physically. Often wishing I could just switch it off, have peace. I can't remember last time I've been to social event. That's why I can't exactly blog about events or social things as truth be told I don't go out. So I concentrate on what I can do, my little platform of creativity.

Hope you like my little photography, and I finally have camera to play around with as you can see, an old camera that was given to me but still in good working condition so yay.

PS- Note I am not fishing for oh poor you, just you to enjoy the pics. xx

Tough Time

I know I don't have big following or anything on here or twitter etc. However I wanted to share this, as my blog is representation of me, recently I've been having unexplained collapses/pass out/black outs, and it feels my fibro has taken big hit. Even typing this taking effort and concentration, as I've had constant migraine since I collapsed outside, where bunch of strangers had to help me and call for help, the picture above is when I got rushed to hospital.

Since then I've sadly had more falls etc. Resulting in more pain on top of normal fibro pains. I am not writing this for sympathy, but more for the reason to explain why I don't talk as much online, or why i'm MIA for periods of times, as you should know I like to chat by now. So not blanking any body, my words may come out funny, as my head is cloudy, and if somebody told me the sky is yellow I would believe them, that's how foggy my brain is at times.

Thank you to those who have asked me how I am, the support my loved ones have shown <3

Will try to keep you updated.

Hope you are well, looking after yourselves. Let me know what you been up to?!
xx

Mini Giveaway (Closed)

It feels like forever since I've blogged. I wish the reason why it's because I've been crazy busy, nope sadly I have been extra poorly (on top of the norm illness- fibro), on antibiotics for it so hopefully it will nip it in the bud. Ok enough about me....

Onto the giveaway.

Wearing my Fibro bracelets.

Jo wearing her Fibro bracelet

The Mini Giveaway Goodies 

What you will win.

Mini giveaway, I bought these myself from the Fibro Fun Event, supporting a good cause. Wanted to share with my readers, and little give back to you. Prize Fibro bracelet and special thank you note Loopy style.
The rules is simple must be follower to my blog, either through GFC, bloglovin or Hellocotton, which are all on the side bar (right side), click on one of them. Leave a comment on this blog post- Say Enter Me, via what way you following my blog, and your email address. Three winners, will be chosen at random. Open international hopefully won't cost me arm and leg, as I know I have a lot of none UK readers. If I only get 3 people enter, I will automatically give it to them, as it's very small prize.
Closing Date: Sunday 10th June 2012 (midnight GMT)

PS - you don't need to have fibro to enter, or to sport this, just rock it spread awareness.
xx

Fibro Fun Day Event

Raising Awareness, so many people have it, yet hardly anybody has ever heard of it/about it. The event took place in beautiful gorgeous building, historic and simple was perfect. So blessed that we had wonderful weather considering lately all it's done has rained. Best believe we enjoyed the sun immensely.

Kingswood House, London.

Had variety of different activities, things for the kids bouncy castle, face painting, arts&crafts, football and more.. Food wise you had fruit, cakes- cupcakes, cookies, popcorn, candy, and Caribbean food on offer. Handmade jewellery that was sold, which I bought couple, that will be in separate post, as I will be doing a giveaway, coming very soon, oh yes bought extra for my readers, toys, books, and other accessories. Dance act performances which were all good. Raffle. Advice for sufferers.

There was a support group which I found the most beneficial, actually meeting others face to face who has fibromyalgia, we all could relate to one another, so refreshing and touching hearing about each others experiences. Learning about techniques on how to soothe the body. Then there was relaxation class, which was just what the doctor ordered. Having chit chat with others. Sense of community, which I loved. Even helped give insight (a snippet) to our friends/families on what we go through on daily basis. I know it educated Jo who was my partner for the day hehe (my friend that came along with me). We both enjoyed the day, so glad  attended, met some lovely people. Everybody who was involved  working for this cause and shall continue too should feel proud, thank you, insert smiley face, as even those myself included who wasn't involved, still deserves a well done as we all know it's not easy, just going out is a mission. Gentle soft pat on the back to all.

Please if you know anybody with fibromyalgia, please do tell them about this website, even if you don't have it and want to know more, worth checking out either way.

x 

 

There will be event where everybody is welcomed invited to- Fibro Fun Day, this is very dear to my heart, the lovely lady who is behind it all is Lindsey Gibbs who herself suffers with Fibromyalgia. Bringing awareness, support, and  community spirit. 

You don't need to have fibromyalgia to attend this event, if you reading this, don't know anybody who has  it- well you know me. So that's not a problem. I will be one of the guest speaker's at the Fibro Fun Day Event, go me for public speech.

Fibro Fun Day Awareness & Fundraising Event

Takes place on Sunday 13th May 2012

Family Day Out

Activities for adults and children - Massages, bouncy castles, face painting, performances and more...
Time: 12 - 5pm
All details here

Twitter
Facebook

Website

Would love to see you there, if you can make it. And for those who can't come because of distance or illness, don't worry I will be doing Blog Post about the actual day, so it's like you with me any way, the joy's of the web, don't miss out my lovelies.

PS- If you want the PDF of the poster, please do not hesitate to ask, leave me your email address and I'll send you the attachment. 

x